Hello Everyone,
I am not afraid to share to my story, and those I do share with tell me "it's courageous." To me, it's just the truth.
In 2016, while in a hospital bed, I began writing my book about my chaotic journey with epilepsy. When I was in the hospital, I looked for a book to shed light on the surgeries, the seizures, and it was often times difficult to the point where I was reading cancer stories. I enjoy memoirs, and triumphs stories. So I took a risk.
My book will be out No Pictures Please: My Unfiltered Story with Epilepsy - majority of my proceeds will go to the Epilepsy Foundation. I can promise you that because we need to raise awareness, and find a cure. It's about the life of seizures, how it's uncontrollable, and being a prisoner to our brains. It sheds light on the truth about this horrific disorder. It's truly unfiltered, but oftentimes amusing because I want to bring a smile to someone's face. You are all courageous, but most importantly - remember, you are NOT alone.
BELOW IS MY STORY:
I've only had epilepsy for 5 years, and it turned my world upside down. It was controlled for a year, and then it went haywire. My seizures come from my occipital lobe, and I have different kinds of seizures - focal onset aware, focal onset impaired awareness, and focal to bilateral tonic-clonic seizures. It's chaotic. In 2015, I started having 25-30 seizures a day of these different seizures. I increased my meds - that didn't work. I went to my neurologist and that is when I started testing for surgery. I got tested, and found that my seizures were to close to my right visual cortex, therefore, if that portion of my brain was taken out, I would possible lose vision in my left eye. I had the RNS implanted. My seizures have decreased, but it has taken a couples years to customize it my seizures.
I'm still having the occasional seizure, and I waited to publish my book for the ultimate comeback, but then I realized, I have epilepsy. And that will never change. One thing I do know, I will NEVER let it define me, because God gives us only what we can handle and apparently God thinks we are total badasses.