EmpowER&D Program
Join EmpowER&D™
We're excited to introduce EmpowER&D, our new platform designed to foster innovation, collaboration, and community-driven research development. This is a unique opportunity to support advancement in epilepsy research for treatment and care.
EmpowER&D™, or “Empowering Epilepsy Research & Development,” is the Epilepsy Foundation’s new program aimed at reimagining how epilepsy research and development progress. EmpowER&D is the Epilepsy Foundation’s secure online platform where people living with epilepsy can enter their health information, connect their electronic medical records, and become active partners in research. Every data point shared builds a living data set that drives discovery, fuels new treatments, and ensures that epilepsy research reflects real lives and experiences.
Driven by a shared vision of revolutionizing epilepsy care through patient-centered innovation, empowER&D is made possible through a strategic partnership between the Epilepsy Foundation and the Iaso Ventures NeuroImpact Fund (NIF). This dynamic collaboration blends philanthropy with strategic investment, accelerating the development of technologies that address the most pressing needs of the epilepsy community.
Welcome to empowER&D™: Empowering Epilepsy Research & Development
The Epilepsy Foundation is building a secure online platform that brings together real-world info from patients, providers & researchers to advance epilepsy research. Learn how this ecosystem is shaping our future.
From Insight to Impact
At its core, empowER&D establishes a centralized platform for collecting, analyzing, and leveraging real-world data from patients, healthcare providers, and researchers, creating a data ecosystem that will seek to inform and support advancement in epilepsy treatment and research. This ecosystem consists of:
Integrated Learning System
The initiative follows Learning Healthcare System (LHS) principles, using continuous data feedback loops to drive innovation, accelerate drug discovery, and refine clinical care practices.
Use Case & Data Set Development
EmpowER&D creates structured, high-value data sets tailored for different stakeholders, including healthcare providers, pharmaceutical companies, and researchers. These data sets support:
- Real-world evidence generation
- Clinical decision-making
- Regulatory advancements
Interoperability and Stakeholder Collaboration
The project connects multiple data sources—including patient registries, clinical trials, and healthcare records—to facilitate seamless information sharing among healthcare providers, pharmaceutical companies, and advocacy groups.
Commercial and Research Partnerships
Through collaborations with biotech, pharmaceutical, and technology partners, empowER&D seeks to create sustainable, scalable solutions that drive advancements in epilepsy research, treatment, and policy.
Meaningful Change with EmpowER&D
Building on a history of innovation through partnerships like NIF and initiatives like the Shark Tank Competition, New Therapy Commercialization Grants, and the Epilepsy Innovation Institute, empowER&D is the next step. EmpowER&D is a continued effort to spark meaningful change and improve the lives of people living with epilepsy. This initiative paves the way for a future where cutting-edge, patient-centered solutions are within reach for all people affected by epilepsy.
Resources
Epilepsy Centers
Epilepsy centers provide you with a team of specialists to help you diagnose your epilepsy and explore treatment options.
Epilepsy Medication
Find in-depth information on anti-seizure medications so you know what to ask your doctor.
Epilepsy and Seizures Helpline
Call our Epilepsy and Seizures Helpline and talk with an epilepsy information specialist or submit a question online.
Tools & Resources
Get information, tips, and more to help you manage your epilepsy.
Related Stories
Press Releases
New Podcast Series Highlights Innovation, Advocacy, and Community Impact at the Epilepsy Foundation of America
Read Story Press Releases
113 Epilepsy Organizations Unite to Express Concerns about Leadership Change at the National Institute of Neurological Disorders and Stroke
Read Story