Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
Epilepsy diagnosis is often
Submitted by Amy Jo on Wed, 2019-03-13 - 04:27
Epilepsy diagnosis is often about eliminating everything else, it’s not actually a waste, just slow. Turns out lots of heart and other stuff can mimic seizures. It’s not time wasted. The tests commonly used with epilepsy patients can come back ‘clear’ even when one has epilepsy, getting into a neurologist who actually knows about seizures is another wait. There’s no definitive test for epilepsy that always works. As a patient learning to ask useful questions to get the most out of a visit is the best way to help things move forward.Our insurance can take two weeks to approve referrals. I don’t know what value they don’t add by the process as our child has a number of chronic conditions and sees many of the same specialists every freaking year.