Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
Hi,Thank you for posting.
Submitted by Anonymous on Tue, 2020-04-28 - 08:04
Hi,Thank you for posting. Treatment and how the body may react to certain medications varies for each individual.We cannot determine if these news symptoms you’re experiencing are related to a reaction to your medication or a separate issue. It’s important that you’re following up with your healthcare team who is most familiar with your history, to explore this further. Many clinics and offices are now offering telemedicine options for non-emergencies if you’re unable to see your doctor in person currently. Ask your doctor’s if you can schedule a time to talk via phone/ other telemedicine resources you all can utilize, or if they can make any additional recommendations for you. You may also want to consider keeping a journal or a diary, to document how you are feeling and the symptoms you describe experiencing in detail, (like you’ve done in your post), which will be very helpful to review with your doctors. My Seizure Diary, can be used to organize health issues, track seizures, manage medications, develop seizure response plans, and more, which can be share with your healthcare team: https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diary . Additionally,you may always contact our 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, hope, support, guidance,and access to national and local resources. 1-800-332-1000, contactus@efa.org. epilepsy.com/helpline