Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
Hi,Thank you for posting, and
Submitted by Anonymous on Mon, 2020-04-06 - 08:59
Hi,Thank you for posting, and we understand your concerns. Seizures can take on many different forms and affect different people in different ways. For some, symptoms during a seizure usually are stereotypic (occur the same way or similar each time), or episodic (come and go), and may be unpredictable. It’s important that you’re able to recognize that this feels different from your auras and seizures you’ve experienced previously. It’s also important that you’re following up with your healthcare team to review this further and if you continue to experience any changes in symptoms, side effects, behaviors, moods, or seizure types/ frequency, to help determine what individual treatment plan may be best for you. Many clinics and offices are now offering telehealth options for non-emergencies, or routine check-in appointments. If your symptoms continue or get worse, you may want to call your doctor and if you can reschedule a time to talk via phone/other telehealth resources you can utilize to discuss this further, or if they can make any additional recommendations. Documenting how you’re feeling and the episodes you describe experiencing in detail, (like you’ve done in your post) will be very helpful to review with your healthcare team. My Seizure Diary can be used to organize your health issues, manage medications, record side effects, other therapies or personal experiences and more, which can be shared with members of your healthcare team. https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diary . Additionally, you may always contact our 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources. 1-800-332-1000, contactus@efa.org. epilepsy.com/helpline