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vit B
Fri, 02/28/2020 - 08:44Topic: Parents & Caregivers
Hi everyone i have 9 year old son diagnosed with partial complex epilepsy 5years ego.Over the summer he have increase in seizures. He was put on vit D 1000mg×1 and vitB6 50mg×1 . His seizures reduce to1-2days a month. In dec. we stop vit. for blood tests. His seizures increase. I put him back on vit d but no change . His results are D -74 B6 -207. Did anyone come across that vit B6 help with seizures? Specialy been so high? Doctor said to stop and nothing else. I will be afraid to harm my son if he get more vit b. Doctors said that vitb and seizures are not related. Thanks
Comments
Thank you for your response.
Submitted by Katarzyna on Fri, 2020-02-28 - 10:28
Thank you for your response. We are doing all the things that you mentioned. Only thing was change is the vit b and d. So far nobody can help with this
Hi,Thank you for posting.
Submitted by Anonymous on Fri, 2020-02-28 - 09:45
Hi,Thank you for posting. Treatment and how the body may react to certain medications, including supplements or vitamins, varies for each individual. For some individuals living with epilepsy vitamin B6 deficiency may trigger or worsen seizures. This deficiency occurs mainly in newborns and infants and causes seizures that are hard to control. Some doctors may also try vitamin B6 in older children with difficult-to-control seizures, but there is no solid evidence that it will be helpful. https://www.epilepsy.com/learn/triggers-seizures/nutritional-deficiencies. It’s best that you continue to follow the individual treatment plan recommended by your son’s healthcare team. When discussing your concerns with his neurologist, it’s important that you review all medications and vitamins your son is taking to make sure they're not interfering with each other. You all may want to consider keeping a journal or diary. My Seizure Diary:https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diaryis a great tool for identifying & tracking seizures, setting reminders, managing medications & side effects, recording medical history, moods, behaviors, triggers,and other therapies or personal experiences, that may affect seizures and wellness, which can be shared with his healthcare team.It may also be helpful to connect with other parents who may have similar experiences, to ask questions, find & give support to each other,by visiting: https://www.epilepsy.com/living-epilepsy/parents-and-caregivers/parents-helping-parents Additionally, you may always contact our 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources. 1-800-332-1000, or contactus@efa.org. epilepsy.com/helpline Or contact your local Epilepsy Foundation: https://www.epilepsy.com/affiliates , to find support groups, events and programs in your community.