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Post Temporal lobe Surgery, Auras returning and collapses
Wed, 09/25/2019 - 16:42Topic: Surgery and Devices
I always had petit-mal, never grand-mal. Has the TL-hippocampectomy on 08/09/2009.
Was removed off carbazamephine, Auras began, but not to seizure level.
However in the last year, the following happened:
# 8th May 18- 1st Collapse in Lidl
# 23rd July 18- 2nd Collapse At home
# 22nd Oct - Loop Recorder in
# 13th April 19 - 3rd Collapse at home
# 23rd April 19 - Pacemaker in
# 29th Aug 19 - 4th collapse, in Gym(on cross trainer for 25min, aura happens, then collapse)
So since the PM is in, the 29th Aug 19 collapse cannot be cardiology related, but has to be neurologically.
I just had another Aura, pretty major that it was noticeable, but no seizure.
Anyone experience the same?
Hi PrinceCharming1984,
Submitted by Anonymous on Thu, 2019-09-26 - 10:08
Hi PrinceCharming1984, Thanks so much for posting, it’s sounds like you've been through a lot. It’s important that you follow-up with your healthcare team and discuss these episodes you’re experiencing further and any changes in behaviors, symptoms, side effects or seizure types/frequency. Seizures can take on many different forms and affect different people in different ways. Learn more about seizures & auras, here: https://www.epilepsy.com/learn/about-epilepsy-basics/what-happens-during-seizure It’s great that you're tracking these episodes you describe, which good information for your healthcare team to review. My Seizure Diary: https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diaryis a great tool for not only tracking seizures, but recording medical history, medications, side effects, moods, behaviors & triggers, which can be shared with your healthcare team. My Seizure Diary also helps you remember what to do - you can have reminders of when to take your medicines, when to refill a prescription, or when you have medical appointments or tests. Recovering from epilepsy surgery is a journey. Learn more about the recovery process and common themes for people living with epilepsy & family members during their journey through epilepsy surgery, here: https://www.epilepsy.com/learn/treating-seizures-and-epilepsy/surgery/recovery-and-life-after-surgeryYou may always contact our Epilepsy and Seizures 24/7 Helpline: 1-800-332-1000 contactus@efa.org, where a trained information specialist can connect you to resources, provide referrals and additional support.epilepsy.com/helpline Or contact your local Epilepsy Foundation at: https://www.epilepsy.com/affiliates to find support groups, events, and programs in your community.