Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
When I was without insurance
Submitted by birdman on Sat, 2017-11-11 - 21:58
When I was without insurance the University hospital I was encouraged me to go through my first EEG monitoring, wait for the first bill, and then approach my state health department and ask for help. My lack of income/assets and the huge bill helped qualify me for Medicaid. Years later I had problems with qualifying for Social Security Disability because I worked too hard while on Disability income. I first sought the help of an attorney who pointed out I was not following doctors' restrictions when I worked so my work record at the time shouldn't count against me. Then I also wrote a letter to my Congressman and I think he had an influence on the process that I am back on government support for my treatment as well as for some life expenses. Like Stephanie pointed, advocate, advocate, advocate. Our government leaders need to know of the unfairness that exists in our health system.