Genetic Code Help, Hypo Prolinemia

Hi, Thank you for posting, For additional information about Hyperprolinemia, please visit: https://ghr.nlm.nih.gov/condition/hyperprolinemia . You all may want to consider joining our Rare Epilepsy Network, (REN). Participating in the REN network offers may benefits, including improving the quality of care for people living with rare epilepsies, finding better treatments, helping researchers understand your grandson's rare epilepsy and much more. The more people that join the REN, the more information we will have about each rare epilepsy and the faster epilepsy researchers will be able to understand their cause, improve treatments and develop cures. To learn more about REN and how to participate, please visit: https://www.epilepsy.com/make-difference/research-and-new-therapies/engagement/rare-epilepsy-network-ren 

Thank you so much. I've visited these pages. At REN, I don't see how to join. Also, are my codes correct, and why aren't they included on EF's rare genetic epilepsies page? 

I’m sorry that you seem to be having trouble with some of these pages. I just put the links into my browser and will look up the rare genetic codes that you provided to see if I can help you since you haven’t received a response. I’m also so sorry to hear that your grandson has this rare genetic cause for his seizures. I haven’t been on the site much, so that’s why I was delayed in responding to you. I do try to follow-up with those that I have responded to in the beginning. I hope to post again with some way to help you in the next day or so, possibly with some answers to your questions about how to use the resources the ConnectHelp provided you.