ELHS Abstract and Publications

The purpose of the Epilepsy Learning Healthcare System (ELHS) is to use data to identify and eliminate inequalities in care and health outcomes to advance epilepsy practice and patient well-being. The goal is to make people better now, not years from now. Below is a list of important abstracts and publications that help explain more about the research and information provided by ELHS.

All bolded entries are publications from the list.

2025

Pellinen J, Buchhalter J. Learning Health Systems and Improvement Science in Neurology. Semin Neurol. 2025 Mar 31. doi: 10.1055/a-2554-1069. Epub ahead of print. PMID: 40064479.

Farrell KM, Rayapureddy JA, Bustamante Rocha R, ElHassan A, Moura LMVR, Hadar P, Saurer T, Rajasekaran K, Fureman BE. A Population Health Study of Patients Prescribed Cannabidiol in the Epilepsy Learning Healthcare System (ELHS) Registry. American Epilepsy Society. December 5, 2025.

Farrell KM, Brooks J, Moura LMVR, Buchhalter J, Fureman BE. Screening as a Network: Improving Barriers to Medication Adherence in ELHS. American Epilepsy Society. December 5, 2025.

Bustamante Rocha R, Chauhan A, Donahue MA, Rayapureddy JA, Brooks J, Elhassan A, Farrell KM, Buchhalter J, Moura LMVR, Hadar P, Fureman BE. Social Vulnerability Index is Associated with Poor Epilepsy Care Delivery and Seizure Outcomes. American Epilepsy Society. December 5, 2025.

2024

Barros L, Banfi C, Wong CN, Lerario MP, Kukla A, Zafar S, Moura LMVR. Seizure control in the LGBTQ+ community: A Pioneer Retrospective Cohort Study. American Academy of Neurology. April 1, 2024.

Barros L, Donahue MA, Fureman B, Moura LMVR. Healthcare Disparities Among Sexual and Gender Minority People Living with Epilepsy: A Cross-Sectional Analysis. Neurology. August 1, 2024; doi: CPJ-2023-000695.

Community-Based Collaboration in the Epilepsy Learning Healthcare System to Improve Completion of Patient-Reported Outcomes. American Epilepsy Society. December 6, 2024.

Donahue MA, Akram H, Brooks JD, Modi AC, Veach J, Kukla A, Benard SW, Herman ST, Farrell K, Ficker DM, Zafar SF, Trescher WH, Sirsi D, Phillips DJ, Pellinen J, Buchhalter J, Moura L, Fureman BE. Barriers to medication adherence in people living with epilepsy. Neurology. Novembe 27, 2024 doi:10.1212/CPJ.0000000000200403.

Hadar NP, Brooks JD, Donahue MA, Rayapureddy A, Elhassan A, Buchhalter J, Fureman B, Farrell K, Cash S, Zafar S, Moura LMVR. Implementing an Interactive Dashboard to Evaluate Medication Side Effects in People Living with Epilepsy. American Epilepsy Society. December 6, 2024.

Patient-Reported Outcomes in Epilepsy: Persistent Inequalities and the Impact of Virtual Care. American Epilepsy Society. December 6, 2024.

2023

Coelho LMG, Donahue MA, Sevak YS, Nuthalapati P, Buchhalter J, Fureman B, Herman ST, Moura LMVR. Feasibility and insights from automated depression and anxiety screening for people with epilepsy. American Academy of Neurology. April 1, 2023.

Coelho LMG, Sevak YS, Donahue MA, Nuthalapati P, Buchhalter J, Fureman B, Herman ST, Finkelstein SA, Moura LMVR. Unraveling the Relationship between Seizure Control and Mental Health Screening Scores in Patients with Epilepsy. American Epilepsy Society. December 23, 2023.

Nuthalapati P, Brooks JD, Coelho LMG, Donahue MA, Herman ST, Abend NS, Trescher WH, Buchhalter J, Fureman B, Zafar SF, Moura LMVR. Seizure Variant in a Nationwide Epilepsy Registry through International League Against Epilepsy Classification: A Phenotypic Approach. American Epilepsy Society. December 23, 2023.

Nuthalapati P; Thomas L; Donahue M; Moura L.M.V.R.; DeStefano S; Simpson R; Buchhalter J; Fureman B; Pellinen J. Improving Seizure Frequency Documentation and Classification. Neurol Clin Pract. 2023 Dec;13(6):e200212. doi: 10.1212/CPJ.0000000000200212. Epub 2023 Oct 19. PMID: 37873534; PMCID: PMC10586801.

2022

Clary H, Josephson A, Franklin G, Herman S, Hopp JL, Hughes I, Meunier L, Moura L, Parker-McFadden B, Pugh MJ, Schultz R, Spanaki MV, Bennett A, Baca C. Seizure Frequency Process and Outcome Quality Measures, Quality Improvement in Neurology. Neurology. 2022 Apr; DOI:10.1212/WNL.0000000000200239.

DeStefano S, Pellinen J, Sillau S, Buchhalter J. Standardization of seizure response times and data collection in an epilepsy monitoring unit. Epilepsy Res. 2022 Apr; DOI: 10.1016/j.eplepsyres.2022.107013.

Fernandes M, Donahue MA, Hoch D, Cash S, Zafar S, Jacobs C, Hosford M, Voinescu PE, Fureman B, Buchhalter J, McGraw CM, Westover MB, Moura LMVR. A replicable, open-source, data integration method to support National Practice-based Research & Quality Improvement Systems. Epilepsy Res. 2022 Oct; doi: 10.1016/j.eplepsyres.2022.107013.

Lin N, Tencer J, Buchhalter J, Clifford L, Grimm J, Cronin S, Whitesell K, Hagans C, Clements M, Holland-Bouley K. Improving medication non-adherence screenings in children with epilepsy: One center's experience as part of the Epilepsy Learning Healthcare System. Child Neurology Society. October 1, 2022.

Moura LMV, Mejia NI, McGraw CM, Donahue AM, Zafar S, Fureman B, Buchhalter J, Schwamm L, Heng M, Sisodia RC. A real-time dashboard of patient-reported determinants of health disparities and adherence to epilepsy quality metrics in a large healthcare system. American Epilepsy Society. December 1, 2022.

Pellinen J, Thomas L, DeStefano S. Improving seizure frequency documentation and classification. American Epilepsy Society. December 1, 2022.

Trescher WH, Paudel S, Naik S, Byrnes CL, Kandel P, Tariq SB, Donahue MA, Farrell KM, Fureman BE, Buchhalter J, Moura LMVR. Quality improvement in epilepsy care: Characterization of the population in a mixed rural and small urban setting #66. Child Neurology Society. October 1, 2022.

Tveter E, Huang J, Akbar A, Binette K, Gunn C, Jacobs C, Zafar S, Hoch DB, Voinescu PE, Moura LMVR, Buchhalter J, McGraw C. Optimizing resource utilization in completion of epilepsy patient-reported outcome measures. American Epilepsy Society. December 1, 2022.

Vinson AH, Seid M, Gamel B, Saeed S, Fureman B, Cronin SC, Bates K, Hartley D. Toward an ontology of Collaborative Learning Healthcare Systems. Learning Health Systems. 2022 Feb; https://doi.org/10.1002/lrh2.10306.

2021

Fernandes M, Donahue MA, Hoch D, Cash S, Zafar S, Jacobs C, Hosford M, Voinescu PE, Fureman B, Buchhalter J, McGraw CM, Westover MB, Moura LMVR. Establishing a Learning Healthcare System to Improve Health Outcomes for People with Epilepsy. Epilepsy & Behavior. 2021 Jan; https://www.sciencedirect.com/science/authShare/S1525505021000391.

Goldstein J, Kwon C-S, Harmon M, Buchhalter J, Kukla A, McCallum S, Raman L, Herman ST, Fureman B, Jette N. Seizure documentation in people living with epilepsy. Epilepsy & Behavior. 2021 Oct; doi: 10.1016/j.yebeh.2021.108383.

Mathew B, Goldstein J, Rossi K, Modi A, Buchhalter J, Ficker D, Kriakopoulos E, Bhraguvanshi A, Farrell K, Soeby L, Tencer J, Blank L, Jette N. The Quality of Self-Reported Tools Used to Measure Antiseizure Medication Adherence: A Systematic Review. American Epilepsy Society. December 1, 2021

2020

Jones FJS, Ezzeddine FL, Herman ST, Buchhalter J, Fureman BE, Moura LMVR. A Feasibility Assessment of Functioning and Quality-of-Life Patient-Reported Outcome Measures in Adult Epilepsy Clinics: A Systematic Review. Epilepsy & Behavior. January 1, 2020; https://www.epilepsybehavior.com/article/S1525-5050(19)30901-1/fulltext.

Moura LMVR, Donahue MA, Dass D, Sanches PR, Ayub N, McGraw C, Zafar SF, Cash SS, Hoch D. Telemedicine can support measurable and high-quality epilepsy care during the COVID-19 pandemic. Am J Med Qual. 2020 Jan; doi: 10.1097/01.JMQ.0000733444.

Paudel S, Kandel P, Mainali G, Kumar A, Byler D, Michael E, Miller S, Kothari S, Farrell K, Fureman B, Harding C, Buchhalter J, Trescher W. Implementation of a standardized method to measure seizure outcome in a clinical practice setting. American Epilepsy Society. December 1, 2020.

Smith JR, Jones FJS, Ayub N, Herman ST, Buchhalter J, Fureman BE, Cash SS, Hoch DB, Moura LMVR. Implementing standardized provider documentation in a tertiary epilepsy clinic. Neurology. 2020 Jul; https://n.neurology.org/content/95/2/e213.

Trescher W, Paudel S, Kandel P, Mainali G, Kumar A, Byler D, Michael E, Miller S, Kothari S, Farrell K, Fureman B, Harding C, Buchhalter J. Epilepsy outcomes measured by a standardized method in a clinical practice setting. American Epilepsy Society. December 1, 2020.

Vinson AH. Putting the network to work: Learning networks in rapid response situations. Learning Health Systems. 2020 Oct; https://onlinelibrary.wiley.com/doi/full/10.1002/lrh2.10251.

2019

Moura LMVR, Magliocco B, Ney JP, Cheng EM, Esper GJ, Hoch DB. Implementation of quality measures and patient-reported outcomes in an epilepsy clinic. Neurology. 2019 Jan; https://n.neurology.org/content/93/22/e2032.

2018

Patel AD, Baca C, Franklin G, Herman ST, Hughes I, Meunier L, Moura LMVR, Munger Clary H, Parker-McFadden B, Pugh MJ, Schultz RJ, Spanaki MV, Bennett A, Josephson SA. Quality improvement in neurology: Epilepsy Quality Measurement Set 2017 update. Neurology. 2018 Oct; https://pubmed.ncbi.nlm.nih.gov/30282773/.

Resources

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Epilepsy and Seizures Helpline

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Tools & Resources

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ELHS Abstract and Publications