ELHS Milestones
Epilepsy News From: Wednesday, April 23, 2025
2024
In 2024, Epilepsy Learning Healthcare System (ELHS) made significant strides in data collection and Quality Improvement (QI), thanks to the dedication of our site teams, community partners, and Patient Family Partners (PFPs). Explore our 2024 State of ELHS Report for highlights on our progress, key measures, and future priorities.
2023
In 2023, ELHS achieved significant progress in data collection and QI. With contributions from our 14 pediatric and adult epilepsy site teams, community partners, and Patient Family Partners, we advanced projects like the tonic-clonic seizures QI initiative, a referral pilot with the EF National Helpline, and key efforts by the Data Coordinating Center (DCC), showcasing the power of collaboration.
2022
In 2022, ELHS made significant strides across 15 clinical teams in 13 states, with 19 community teams joining our mission. Key achievements include over 9,900 unique patient records added to the registry, adoption of AAN quality measures, and impactful projects like medication adherence initiatives. With over 2,400 uses of our resources, 10 webinars, and 2 new publications, 2022 highlighted the power of collaboration to improve epilepsy care. Thank you for being part of this progress!
2021
In 2021, ELHS achieved significant milestones across 14 clinical teams in 13 states and 18 community organizations. We reached an 87% seizure frequency documentation rate, conducted 2 virtual Learning Sessions with over 115 attendees, and released new patient toolkits for DEE and difficult-to-treat seizures. With 3,000+ toolkit utilizations, 9 webinars, and 208K social media impressions, ELHS continued to drive innovation and collaboration in epilepsy care. Thank you for being part of this journey!
