Raising My Voice for Epilepsy Awareness

I’ve been living with epilepsy since I was 2 years old. Growing up came with many challenges, whether trying to fit in with my peers or constantly feeling like I was falling behind. Moving to the U.S. added another layer of difficulty. As a foreigner with a disability, adjusting to a new culture while experiencing culture shock was overwhelming.

My seizures stopped unexpectedly when I was 5, and for a while, I was doing well. But everything changed when I was 14. I had a seizure during PE class in middle school—it was the most traumatic and terrifying experience of my life. I had only been in the U.S. for a year and was still learning the language, barely able to express my thoughts or emotions. That isolation made everything even harder.

Still, from that moment on, I chose to keep my head up and continue pursuing my dreams. I pushed through, eventually graduating from Arizona State University and earning my certification to work as a music therapist. Though epilepsy still affects my daily life, I refuse to let it take away my happiness.

My seizures have impacted my cognitive functioning, and the medications I take can leave me feeling exhausted, sometimes to the point where all I want to do is sleep. But I try to celebrate the good days. On those days, when I feel alert and energized, I make the most of the things I love—playing piano, going for a walk, or simply enjoying the moment. I truly believe the mind has a powerful effect on the body. That’s why being aware of my mental health and maintaining a positive mindset has become one of the most important parts of living with epilepsy.

Even though we live with “brainstorms,” remember that sunshine always follows. Just like after a thunderstorm, the sun eventually comes back out. Keep your head up and continue chasing your dreams. Everyone’s path looks different, so don’t compare yourself to others. Just keep working hard to reach your own unique goals.

I wanted to share my story to inspire others who are also living with epilepsy every day. I want you to know that you’re not alone—your thoughts and feelings are valid, and people do hear you. You are seen, you are understood, and your voice matters.