Change Our Epilepsy Story

Tell Us Your Story

Stigma can often steer a person toward silence. But what if we changed our story by sharing our experience with epilepsy and overcoming stigma?

Share Your Story

Find Your Local Epilepsy Foundation

The Epilepsy Foundation offers local assistance, support, and resources.

Local Resources

Epilepsy and Stigma

Stigma can be the biggest struggle of a person’s epilepsy journey, yet no one is talking about it. Together, we can address the stigma and change our journey.

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How Will You Change Your Epilepsy Story?

People with epilepsy — and their caregivers — often bear the negative attitudes and beliefs surrounding this condition, and they often don’t talk about it as a result. Because no one is talking about epilepsy, the stigma remains. Let’s get everyone to start talking about epilepsy and seizures. Let’s Change Our Epilepsy Story

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How Support Makes a Difference in My Journey

“In the beginning, it was hard, but over time, as I started talking about epilepsy more, I became more comfortable with it. There was a time when I’d cry just thinking about it, and I’d refuse to explain why I couldn’t do certain things. But now, being part of an online support group has made a huge difference.”

Overcoming Stigma: My Journey with Epilepsy

“Eventually, the seizures became more severe, involving convulsions and loss of consciousness. Unfortunately, there were many misconceptions about epilepsy among my peers. Some believed I was ‘possessed,’ while others thought the condition was contagious.”

More Than a Diagnosis

“My daughter is my greatest inspiration. She sees my art before anyone else does. Her favorite color is purple—the color of epilepsy awareness—and now, it’s become part of my signature. She reminds me that I’m more than this condition. That I still have a purpose. That there’s still so much beauty left to create.”

Raising My Voice for Epilepsy Awareness

“I wanted to share my story to inspire others who are also living with epilepsy every day. I want you to know that you’re not alone—your thoughts and feelings are valid, and people do hear you. You are seen, you are understood, and your voice matters.”

Let’s #ChangeOurEpilepsyStory

To create awareness.
To encourage education.
To change the conversation.
To overcome stigma.

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